LowMoorBoro
Well-known member
As the title says, in September I am running 8 half marathons in 8 days, starting with the Leeds half marathon on the 5th and ending with the great north run on the 12th. The runs in between will all just be local runs recorded using a tracking app on my phone.
Why am I doing this? I am doing this to raise money and awareness for Myotonic Dystrophy, particularly Congenital Myotonic Dystrophy. I was a little hesitant to post about this at first but thought I’d bite the bullet.
My Daughter Daisy was born last September and was diagnosed with Congenital Myotonic Dystrophy, I had never heard of this condition prior to this and was completely un-prepared to receive such a diagnosis. There is no cure for the condition and the only treatments available are to try to manage the symptoms.
Daisy is now nearly 11 moths and has been going from strength to strength and has even in such a short time surpassed any expectations we could have had; however, it is a degenerative condition, and we don’t know when deterioration will occur. We are just enjoying each day as they come.
There is a piece here on the Congenital Myotonic Dystrophy website about our Daughter’s story so far if anyone would like to read further - https://www.congenitalmyotonicdystr...EyKvTmTIEQO4xH3He1gFk29t6P4boxtrSo4EcuEpfkaIQ
The Justgiving page for my runs is here if anyone would like to contribute- https://www.justgiving.com/fundraising/jonathan-lawson1
Thank you for reading and I am happy to answer any questions anyone has.
Why am I doing this? I am doing this to raise money and awareness for Myotonic Dystrophy, particularly Congenital Myotonic Dystrophy. I was a little hesitant to post about this at first but thought I’d bite the bullet.
My Daughter Daisy was born last September and was diagnosed with Congenital Myotonic Dystrophy, I had never heard of this condition prior to this and was completely un-prepared to receive such a diagnosis. There is no cure for the condition and the only treatments available are to try to manage the symptoms.
Daisy is now nearly 11 moths and has been going from strength to strength and has even in such a short time surpassed any expectations we could have had; however, it is a degenerative condition, and we don’t know when deterioration will occur. We are just enjoying each day as they come.
There is a piece here on the Congenital Myotonic Dystrophy website about our Daughter’s story so far if anyone would like to read further - https://www.congenitalmyotonicdystr...EyKvTmTIEQO4xH3He1gFk29t6P4boxtrSo4EcuEpfkaIQ
The Justgiving page for my runs is here if anyone would like to contribute- https://www.justgiving.com/fundraising/jonathan-lawson1
Thank you for reading and I am happy to answer any questions anyone has.